I am a physically & cognitively challenged 34 year old woman living in the community and this is my story.

When I was born I only weighed 2 lbs.. 13 ounces. Prior to my birth, my mother, Fae and I both had serious health problems. As a result, I suffered massive brain damage. Today, my disabilities include the following: microcephaly, cortical blindness, spastic quadriplegia, profound mental retardation, impaired stomach motility, GERD, reactive airway disease, and seizure disorder.

I have had four major orthopedic surgeries in my life, been home schooled, used computers for communication, developed real speech, studied music, graduated from Perkins School for the Blind in 1996, and in 1997 established my own home in the community.

What a beginning!

Who would have believed that I could begin my life with so many permanent obstacles that I've had to overcome and arrive to where I am now: a happy well adjusted woman with a multitude of interests, dear long term friends, good health and a desire to make the world a better place for all people.

 

Essential Support Services 24 Hour Per Day 1:1 or 1:2 Supports

Skin care, medication delivery and monitoring,hydration&nutrition via G-tube,physical therapy,application of orthotic devices, occupational therapy, speech and language, music, life skills,social/cultural support, and medical team access for health care maintenance.

Here's a list of some of my favorite community activities:

Boston Lyric Opera, North Shore Music Theater, Museum of Science and Museum of Fine Arts